Patient Resources

Aurinia is dedicated to showing up for patients and care providers in myriad ways, from grants to programs that help patients navigate their healthcare journey to sponsoring and participating in events that help raise awareness and cultivate community. Read on to find out more about how we’re working to change what it means to live with an autoimmune disease.

The organizations listed below provide education and help create connections for people living with lupus and lupus nephritis. Please note that Aurinia does not endorse or monitor the activities and content of advocacy groups, their websites, or third-party online communities.

National Organizations

American Association for Kidney Patients

The oldest and largest, independent kidney patient organization in the U.S., AAKP is dedicated to improving the lives and long-term outcomes of kidney patients through education, advocacy, patient engagement and the fostering of patient communities. AAKP fights for early disease detection and the appropriate diagnosis of rare/genetic conditions; increased kidney transplantation and pre-emptive transplantation; full patient choice of either in-center or home dialysis; protection of the patient/physician relationship; promotion of research and innovation including artificial implantable and wearable kidneys; and the elimination of barriers for patient access to available treatment options.

American Kidney Fund

The American Kidney Fund fights kidney disease on all fronts, working on behalf of Americans living with kidney disease, and the millions more at risk, with programs that support people wherever they are in their fight against kidney disease — from prevention through post-transplant living.

Lupus and Allied Diseases Association, Inc.

The Lupus and Allied Diseases Association (LADA) is a national organization dedicated to enhancing quality of life for those impacted by lupus and allied diseases and other conditions of unmet need by fostering collaboration among stakeholders, promoting unity in the community, supporting innovative advocacy, education, awareness and biomedical research program initiatives, and ensuring the patient viewpoint is present and heard in the healthcare, regulatory, policy and research communities.

Lupus Foundation of America

The Lupus Foundation of America is a national organization devoted to improving the quality of life for all people affected by lupus through programs of research, education, support, and advocacy.

National Resource Center on Lupus

Developed by the Lupus Foundation of America, the National Resource Center on Lupus provides up-to-date information and resources for the lupus community. Find support and connect through local chapters of the Lupus Foundation of America.

Lupus Research Alliance

The Lupus Research Alliance is the largest nongovernmental, nonprofit funder of lupus research worldwide. The organization aims to transform treatment while advancing toward a cure by funding the most innovative lupus research; fostering diverse scientific talent; stimulating collaborations; and driving discovery toward better diagnostics, improved treatments and, ultimately, a cure for lupus. Because the Lupus Research Alliance’s Board of Directors funds all administrative and fundraising costs, 100% of all donations goes to support lupus research programs.

National Kidney Foundation

An organization in the U.S. dedicated to the awareness, prevention, and treatment of kidney disease for hundreds of thousands of healthcare professionals, millions of patients and their families, and tens of millions of Americans at risk.

HCP Resources

Time Is Nephrons

Time is Nephrons is a lupus nephritis disease-state awareness campaign for healthcare professionals. The initiative aims to highlight the importance of active screening for early diagnosis to potentially minimize the impact on kidney function and improve long-term outcomes for every patient with LN. If you would like to learn more, please visit www.timeisnephrons.com.

CME GRANTS

To support our goal of advancing healthcare and improving patient outcomes, Aurinia provides grants for independent medical education. Requests for support of an independent medical education activity should be sent to CME@auriniapharma.com at least 6 months prior to the activity and will be reviewed on a rolling basis.

PLEASE PROVIDE THE FOLLOWING INFORMATION:

Letter of request on your letterhead
Detailed information regarding the objectives of the educational activity, including a description of the target audience, program outcomes, proposed faculty, and therapeutic area to be discussed
Detailed agenda including time and location
Detailed budget for the entire activity sufficient to determine what percent of the event or program Aurinia is being asked to support
W-9 form

FUNDING RESTRICTIONS FOR EDUCATIONAL GRANTS

Aurinia adheres to the standards defined by the Accreditation Council for Continuing Medical Education (ACCME) guidelines, the FDA Guidance: Industry Supported Scientific Educational Activities, and the PhRMA Code.

ACCORDINGLY, AURINIA EDUCATIONAL GRANTS MAY NOT SUPPORT:

Travel, lodging, meals, or registration for non-faculty healthcare professionals to attend an educational program
Operating expenses not directly or exclusively necessary to conduct the event or activity outlined in the grant application
A promotional exhibit, display space, or advertisement
Entertainment or social events

Please note that all applicants receiving educational grant support will be required to provide periodic interim program updates, as well as final educational program outcomes and a full budget reconciliation when the activity concludes.

INQUIRIES FROM OUTSIDE THE U.S.

For all funding inquiries originating outside the U.S., please complete the request form. Our team will review your request and reach out with further directions.

PATIENT SUPPORT

Living with a serious disease can feel like a lot to manage. We are committed to supporting people living with serious autoimmune diseases like lupus nephritis — and their care partners — with a wide range of resources.

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PATIENT RESOURCES

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